What’s life really like for your beneficiaries in a world struggling to manage Covid-19?

What’s life really like for your beneficiaries in a world struggling to manage Covid-19?

Why is evidence on beneficiaries’ lives mission-critical for charities today? Patients are first and foremost people; people who live complex, emotional and demanding lives – never more so than today. Research that listens openly to people’s experience of their health condition, gets to know them at a personal level and captures a genuinely holistic view of their lives, generates evidence…

New project announcement: The Brain Tumour Charity

We are delighted to working again with The Brain Tumour Charity on another strategic intelligence project looking at quality of life issues and the patient experience.

This project follows on from work we undertook nearly five years’ ago generating new, robust evidence about the lives of families affected by a brain tumour. This ground-breaking research included a largescale quantitative survey followed by in-depth qualitative work through online diaries and interviews. Based on this primary research, a full intelligence report was produced, alongside two public reports ‘Losing myself’ and ‘Finding myself in your hands’. This project was followed by a specific, under-18 research project with a broadly similar approach and range of outputs.

Following the research, the charity moved forward with a five-year strategy ‘Defeating brain tumours’ with two clear goals: double survival within ten years and halve the harm that brain tumours have on quality of life. The research has been used both strategically and tactically over the past five years, informing a range of activities and services including fundraising campaigns, engagement with clinicians and the development of support services.

We are now working with the team at the charity to undertake a fresh programme of primary research, evaluating progress and impact since the last study, and helping to shape and inform the charity’s next five years.

New brand for the Bone Cancer Research Trust: ‘Until there’s a cure’

New brand for the Bone Cancer Research Trust: ‘Until there’s a cure’

The Bone Cancer Research Trust has come on an incredible journey since it was founded by a dedicated group of bereaved parents in 2006. To date, they have funded research projects totalling over £2.2m and offered vital support to affected families.Approaching their 10th anniversary, the charity commissioned Alterline to help develop a new strategy and brand to ensure Bone Cancer…
Life with Osteoporosis: the untold story

Life with Osteoporosis: the untold story

Osteoporosis is often referred to as ‘the silent condition’. It’s time to break the silence. It is estimated that around 3 million people in the UK have osteoporosis, a condition which can devastate lives and rob people of their independence, mobility and quality of life. The National Osteoporosis Society commissioned Alterline to undertake the largest UK study of what life…
The Evidence Multiplier report explores using patients’ experiences of clinical trials to maximise knowledge and drive future success.

The Evidence Multiplier report explores using patients’ experiences of clinical trials to maximise knowledge and drive future success.

Because Alterline has undertaken such extensive work on patient experience, it was surprising for us to discover the lack of attention that has been paid to this area of practice within clinical research − particularly given the enormous variation that we know exists in the participants experiences of clinical trials. Recognising this as an opportunity to apply our expertise to…
Working with Alterline to embed patient-centricity

Working with Alterline to embed patient-centricity

As patient-centricity becomes increasingly important to the pharmaceutical business model, methods that enable deeper and more personal connections to patients’ lives are crucial. Alterline is a specialist, qualitative research consultancy working to embed patient-centric practices. Our approach is based upon a fundamental principle: patients are first and foremost people; people who live complex, emotional and demanding lives. True patient-centricity means…

Hidden Heartache – The untold story of bowel cancer

  Every year in the UK more than 41,000 people are diagnosed with bowel cancer and it’s the second biggest cancer killer. But if diagnosed early, more than nine in ten people survive. Beating Bowel Cancer is the UK’s leading charity supporting the patients, family and friends affected by the condition. The charity’s vision is of a world where bowel…
‘Meningitis and Me’: new findings on the devastating impact of the disease inform strategic vision

‘Meningitis and Me’: new findings on the devastating impact of the disease inform strategic vision

It is estimated that around 500,000 people in the UK have had meningitis, an infectious disease that can kill within hours and for those that survive, the after-effects can be devastating and lifelong. We worked in partnership with the charity Meningitis Now, the founder of the UK meningitis movement, to undertake an extensive and ground-breaking study to uncover the impact of…